October 15, 2008

And she had just grown hair

The results of the MIBG show pretty much what we were cautioned to expect. The tumor is still active. The chemical levels in her urine are also both up by about ten points, which is another indicator. After over two months of not being on treatment, she will begin a more intensive five-day round of chemo on Monday of next week. After next week she'll go to clinic twice a week for labs, until the the third week, when it starts all over. After two rounds she'll have an MRI. The doctor thinks that she will need 4-6 more rounds of this chemo.

Because of the intensity of this new combination of drugs, we'll need to give her a GSF shot a couple of days after her last day of chemo. I think the shot has to be given once a day for maybe five days, but I'm not too sure about the details yet. GSF will raise her white blood cell count. As you can imagine I'm not too excited to have to give my almost one-year-old shots.

Eight months later we're still fighting this thing.

6 comments:

Hope said...

I know you're upset (and rightly so!). I'm sorry. It doesn't seem fair that she has to fight such a horrible disease. You're doing an amazing job. Her hair will grow back again. ((Hugs)). You're in my T&P. This chemo will work!

Hope

Becky said...

Wish I could say something to help, besides sending you all the love and support we have to give. I have faith that she will come out of this and be so much stronger because of it, as well as you. Healing wishes always,

Becky

AM said...

I'm so sorry, Amber. We're thinking about you guys and saying prayers for Madeline.

jocelyn said...

I am at a loss for words I guess because I've been trying to think of something to say for about ten minutes now. Words just feel inadequate.

I'm so sorry that you are still dealing with this and face more intense chemo. Also, I'm really sorry about the shots. I wish I could do more to help you.

Always,

Jocelyn

Ericka said...

stupid cancer.

I love you all...

will you be able to give MG her shots through the port? I know that helps if you can.

Hang in there and let us know how we can help.

Kyle said...

Stay strong Bear, things seem pretty bad sometimes, but they will work out. Just know that we're thinking about you and Madeleine, and Ryan too.

Kyle