December 1, 2008

MRI results

The tumor is bigger

Chemo has been canceled for now, as it didn't help.

We're waiting to hear about next steps. Our doctor is waiting to hear back from a doctor in LA that specializes in experimental neuroblastoma treatments. If we qualify for their treatment, we may be going to LA. Our doctor is also scheduling a consult with the radiation doctors at UCSD. We don't know if radiation will be the next step, but she would like to have the consult anyway.

That's all I know so far.

10 comments:

Ericka said...

sigh.

that F@^&ing sucks

Hope said...

I'm not sure what to say that would make you feel better, but I want you to know I'm here thinking and praying. I'm remaining hopeful that there are treatments to help her beat this. Radiation helped me and so many others.

((Hugs))
Hope

Sarah said...

I just wanted you to know that I'm thinking about you and Madeleine. I have no words right now as I'm sure there is nothing that will make you feel any better.

I'm angry with you.

Susan Dana said...

I am so sorry Amber. We love you and Ryan and Madeleine. I wish there was something we could do.

Becky said...

Man....that sucks :( Anything you guys need, it's yours.

Anonymous said...

Amber, Ryan & Madeleine, I'm praying earnestly & hopefully that the doctors will find a way to provide the ultimate treatment to destroy the tumor. Your bravery and courage are genuinely admirable and I ask in prayer that you will receive all the strength and comfort you need.
I'm thinking about you and praying for you. God Bless you - With Love, Connie (friend of Madge and your family.)

AM said...

I'm so sorry Amber. We're thinking about you and praying for your Madeline.

Hi, my name is Sarah. said...

Oh shit, that is really sucky. I'm so sorry Amber! I hope you get some good news soon.

Nick said...

Hang in there, friend. Sorry we missed you over T-day.

jocelyn said...

Holy crap. I'm so sorry ... I wish there was something we could do.

Ericka said it best actually. That does f@#$ing suck.