May 21, 2014

Mad Madam Madeleine

We've had a couple more weeks in the hospital, in Jacksonville, and in Atlanta.  Every time we go for a consultation or clinic visit we end up in the hospital for a week.  I don't want to go into all the details, but Madeleine's health is rapidly declining.  We, with the support and urging of her doctors, have brought her home and she is currently on hospice care.  This is not a decision that was easily made, but it's also the only decision that we have left. We have simply run out of options.



10 comments:

Christi Long said...

I don't know if you will remember me but my name is Christi Long and I am friends of your parents. I worked for Dave for many years.
I'm so sorry for Maddy and the family. I have had so many losses in my life and they are all simply unfair and too early. I cannot express enough how deeply saddened I am for you guys. My thoughts and love are with you.

Anonymous said...

I know all the details, but it still makes me tear up to hear the options have run out. The whole drive to the airport Karen and I said we shouldn't be leaving and kept wanting to turn around. We miss you guys and we love you. Kyle.

Anonymous said...

You do not know me, but I have followed your blog via a mutual friend over the years. I am wishing you and your family strength and peace. I know that Maddy can feel the love that you are giving her and that we in turn are all sending out to you all. I cannot imagine what you are going through or how you face what's ahead, but you have gone through everything so far with grace and humility and are inspirational to all of us. Take comfort in the time you have had. Allow yourself to feel every emotion that is coming at you. Honor and love your children. Make every day count. I'm really at a loss for any words that would be useful to you right now, but know there are probably more of us out here than you know that have been following from a far and are holding your family close in our thoughts, prayers, wishes, love and, yes, even hope.

Anonymous said...

Amber - I am so sorry to hear that you guys have run out of options for Madeleine's treatment. This news breaks my heart. I have been following your blog and have been in awe of what a fighter Madeleine is and what an amazing mom you are. I will continue to pray for you and your family. Love and peace to you guys. Love Elsa

Bree said...

I have come here and read this post and the comments several times, since yesterday. My heart is so heavy. I am so sorry, Amber. I hope you guys have some beautiful moments left. Much love.

Elizabeth Oscar said...

My boys (Luke and Landon) are in Madeleine's class at school. I wanted you to know that they talk about what a sweet friend Madeleine has been to them all the time. They just love having her around! I am so saddened by this latest development and will continue to keep your family in my thoughts and prayers.
Elizabeth

Jenny said...

My heart is breaking for you guys. I am completely without words to express how sorry I am, but please know you are in my thoughts.

Anonymous said...

I am so sorry. I really am at a complete loss as to what to say, as it truly feels no words will ever be adequate for the anguish you are feeling. You do not know me, but I have been following Madeleine's blog for years across the oceans. Her courage, strength, bravery and beauty throughout this journey, as well as your love, grace, trust and the care of your gorgeous family is nothing short of inspirational. I wish you and your family comfort, peace and love, holding hope for creation of many new, treasured memories and experiences with your beautiful and equally brave daughters during this time.. Thank you for sharing Madeleine's journey and yours with us, near and far. You are all in our thoughts, hearts and wishes, held in love and hope for this journey and the road ahead.

Anonymous said...

Amber - This is Dan, your old neighbor in LA. I didn't talk to you guys very much because I have PTSD and have a hard time socializing. But, I wanted to tell you how much I have worried for Madeleine. She is an amazing little girl. I would always joke with her and try to trick her but she would always see through my dumb jokes. I will have Katie and Ellie post a video to Facebook for her. I have no idea what you and Ryan are going through but it must be the worst thing in the world. I empathize for you both. Please know our whole family is thinking of Madeleine and everyone else.

Anonymous said...

Dearest Amber and Ryan ~
My love to you all! I can not express in words how I am feeling for you, just know I am here if you need!
Mary