Look at all the CureSearch logoed items I received in the mail today!
I know this is supposed to help my fundraising efforts, but I don't really have any idea what to do with it. Any ideas? There is a giant banner, two shirts, two water bottles, a bunch of bracelets and gold ribbon stickers (gold is the color for childhood cancer), brochures and a bag.
Give some to the next person to donate?
In other non-news: I got a call about Mad's latest VMA/HVA results. Apparently the wrong test was ordered, and they don't have the correct results. Lately it seems we have about a 50% chance of getting the correct results from these tests, or getting results at all. It's frustrating because, while it's only urine, and it's easy to collect, we do keep her on a special diet for three days beforehand that eliminates many of the foods that cause the test results to rise. Our case manager was very apologetic and offered to redo the test, but I opted to just wait and do it whenever we go in for her MRI - which is SUPPOSED to be this month, but the hospital is on some new scheduling system and everything is backed up (surprised? I'm not). I don't mean to be ungrateful, because the hospital, doctors, and nurses really have been amazing throughout this whole journey, but it really feels like there are a lot of snafus and administrative errors and holdups.
So, we're currently waiting for an MRI to be scheduled, with a possible BAER hearing test at the same time (to see if the chemo she received did any damage to her hearing), and another VMA/HVA test at that time as well. I'm also waiting for our insurance to authorize more physical therapy visits. The physical therapy office put in the request late because, again, of this new scheduling software, so again we are waiting. I should be hearing about that any day now.