Two strange things did show up on the scans. The first is that there is fluid build-up in her left lung. This happened after her initial relapse too, and it eventually had to be drained. Her breath sounds are fine and she is having no problems with shortness of breath or anything like that. We'll get a chest x-ray tomorrow for a closer look, but it's probably something to just watch for now. The second thing is that there appears to be a fluid filled cyst in her stomach. It was present on the last set of scans but just barely, so it is growing. Our doctor said it looked benign on the scans, so again it is something to watch for now.
Madeleine is having no pain - we've stopped all the pain meds and removed the fentanyl patch that she was on previously. Her energy is great, her appetite is awesome, and she is really happy. She is a different kid. We haven't seen her looking and feeling this good in a long time. I'm so happy that she is doing so well.
The chemo drugs that she is on are not really expected to be curative. They may work for some time, and then the tumor will adjust and they will stop working. We are going to meet (yet another) neuroblastoma specialist in Atlanta so that we can put together a solid plan b for when (if) these drugs stop working.
Things looked so bad a few weeks ago, and we are so happy that she has responded well to these drugs and that she is able to have this time.
5 comments:
Thanks so much for the update - really wonderful to hear how good she's been feeling. I love love love the pictures of her - she is looking so fantastic and happy! -Nicole
So glad to hear she is happy and not in pain. We love you Madeleine! Uncle Kyle and Aunt Karen.
So happy to hear that she is feeling well. You all are always in our thoughts!
Love the image of her skipping and dancing again! Nice to see the girls looking relaxed and lovely on the beach too, all 3 have grown so much, so quickly
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